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Rare Action on the Road – Oklahoma City

September 27 @ 10:00 am - 2:00 pm EDT

NORD photo: Rare on Road.

Oklahoma Rare Action Network members are invited to join us in-person at the United Way of Central Oklahoma on Friday, September 27 from 9am to 1pm CT for an advocacy workshop! NORD staff will provide:

  • Education on Rare Disease Advisory Councils (RDACs);
  • A workshop on how to advocate when meeting with legislators and staff;
  • An overview of NORD and how you can participate in raising awareness for the rare disease community!

Refreshments will be provided in the morning, and lunch will be provided in the afternoon.  We hope you’ll join us! Please click here to register.

Details

Date:
September 27
Time:
10:00 am - 2:00 pm EDT
Event Category:
Event Tags:
National Organization for Rare Disorders