The RYR-1 Foundation is celebrating a decade of supporting individuals and families impacted by RYR-1-Related Diseases (RYR-1-RD). The organization holds International Family Conferences for the RYR-1-RD Community and the fourth Family Conference will be held July 24th – July 27, 2025, at the Hyatt Regency Pittsburgh International Airport, Pittsburgh, PA, U.S. More than 550 individuals from 10 countries have attended prior Family Conferences.
These Family Conferences are unique opportunities for affected individuals and families to meet, form friendships, and develop a true RYR-1-RD Community.
The 2025 Family Conference will feature:
* Educational lectures and interactive panel discussions with professionals and members of the RYR-1-RD Community
* Enhanced social activities
* A revamped Kids Club
* Opportunities to connect and share experiences with others in the RYR-1-RD Community
* And more!
Registration for The RYR-1 Foundation’s 2025 Family Conference is now open! Register by December 31, 2024, at 11:59 pm Pacific Standard Time to receive an “early bird” discount.
