Please join us for a 50-minute, cost-free webinar featuring experts in rare cancer registries and natural history studies, along with rare cancer patients and advocates. We will explore how patient advocacy groups can manage their own patient registries, and how those registries can empower patients and researchers to overcome challenges faced by people affected by rare cancers. This webinar is brought to you by NORD’s Rare Cancer Coalition and is suitable for patients, caregivers, advocates, health professionals and the public.
