ADNP-Kids Research Foundation

The ADNP Kids Research Foundation is the world’s first non-profit organization to fund research, publish papers and promote awareness for ADNP Syndrome. We are the worlds largest financial contributor of research for ADNP Syndrome, to date contributing approximatly 2.5 million dollars directly to our research projects. Our mission is to advance the awareness and understanding of ADNP Syndrome / Helsmoortel – Van Der Aa Syndrome (ADNP) by supporting research for treatments and drug development, increasing awareness and scientific understanding, promoting individualized specialty care and protocol, supporting families and providing information to help all individuals with ADNP realize their full potential and have a better quality of life.