CRELD1 Warriors
159 Reading Road South
Church Crookham, Fleet, United Kingdom
About CRELD1 Warriors
Our very small but mighty CRELD1 Warriors community started as a Facebook Group in 2019 as a way to connect and support families around the world that have received a CRELD1 diagnosis. We have since registered CRELD1 Warriors as a charity and our mission is to provide support for families caring for a child with CRELD1, to raise awareness of the condition and to support medical research. We have worked closely with NIH and Yale School of Medicine to publish the first medical paper on CRELD1 and now we aim to build upon this research to learn more about potential therapies. |