Cystinosis Research Network

The Cystinosis Research Network (CRN) is a voluntary, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis. The CRN’s vision is the acceleration of the discovery of a cure, development of improved treatments and enhancement of quality of life for those with cystinosis. Our commitment to our community lies in our tireless efforts to provide family assistance through facilitating several support groups as well as hosting a family conference every other year. At this conference we bring families and the medical community together in hopes to accelerate the accomplishment of our stated goals and objectives.