Danish Centre for Rare Diseases and Disabilities

The Danish Centre for Rare Diseases and Disabilities is a non-profit government organization that is concerned primarily with severe physical or mental disabilities that affect a population of less than one person in 10,000. Most of these disorders are congenital or hereditary in nature. Founded in 1990, the center’s objectives are to offer nationwide support to adults and families who have children with rare disabilities or special needs, and to ensure their access to highly qualified information and counseling services; to network affected individuals and family members with other affected families thus promoting mutual support and self-help groups; to network healthcare professionals; and to promote dialogue and research. A wide range of information and counseling services is offered to all who, either as health professionals or as private persons, need information on rare diseases. Target groups are local professionals and authorities involved in the provision and coordination of counseling, treatment, education and support for persons affected by rare diseases.