DEBRA International

The DEBRA International is an international non-profit organization that provides support to patient and families affected by epidermolysis bullosa (EB), a group of rare, inherited skin diseases characterized by recurring painful blisters and open sores, often in response to minor trauma, as a result of the unusually fragile nature of the skin. DEBRA International serves the common aims of individuals and families whose lives are affected by EB and promotes the provision of services that meet the needs of these individuals and families. In order to reach their goals, DEBRA International offers support groups, education, research information, referrals, networking, and advocacy to EB patients.