European Leukodystrophy Association

The ELA is an association of motivated and informed parents and patients who share responsibilities within ELA and have united their efforts in order to fight leukodystrophies and myelin diseases. Their goals are to help and support families affected by leukodystrophy, stimulate research, and raise public awareness. ELA also forms part of an international network of information and research into myeline diseases. Leukodystrophy is a group of rare, genetic diseases that destroy the central nervous system. Significant impairment of physical and mental abilities is usually present in individuals with this disease. Other symptoms are specific to the type of leukodystrophy.