International Foundation for CDKL5 Research (IFCR)

The International Foundation for CDKL5 Research began as a group of parents whose children had CDKL5 Deficiency Disorder. We came together and dared to dream of a new future for our children. With education and research, we believe a life-changing cure can be found. In 2009, we incorporated the International Foundation for CDKL5 Research as a non-profit organization. Since then, we have gone on to fund ground-breaking research and establish CDKL5 Centers of Excellence across the United States.