International Joseph Disease Foundation, Inc.

The International Joseph Disease Foundation, Inc., is a non-profit, voluntary organization that was established in 1977. The foundation is dedicated to assisting individuals who are affected by, or may be at risk for, Machado Joseph disease by providing information on the disorder, supporting and promoting clinical research, and helping affected individuals locate medical, social, and genetic counseling services. Joseph disease is a rare inherited disorder of the central nervous system characterized by the slow degeneration of certain areas of the brain. The foundation also engages in public education and offers a variety of materials including fact sheets, a flier on the history of the disease, and a newsletter.