International Sacral Agenesis/Caudal Regression Association (iSACRA)

iSACRA is a 501(c)(3) nonprofit based in the USA and is the world’s only international organization serving those living with the rare condition of sacral agenesis or caudal regression syndrome (SA/CRS). iSACRA provides support and information to persons with sacral agenesis/caudal regression syndrome and their families worldwide. iSACRA promotes awareness and collaborates in research and advocacy to enhance the quality of life of persons with this condition and to advance medical knowledge.