MPN Education Foundation

The Myeloproliferative Neoplasms Education Foundation (MPNEF) was founded in 2004 as a 501c3 organization run by MPN volunteers. It is focused in bringing education, information and support to MPN patients all over the world. This is achieved through MPN-NET, an un-moderated discussion list that addresses patient experiences, psychosocial issues, new research, clinical trials, current treatment practices and alternatives. They also provide educational videos about MPN, a newsletter, and they host a biannual patient conference in conjunction with the Mayo Clinic. MPN is a related group of hematological malignancies in which bone marrow cells responsible for producing red blood in the body malfunction. MPN’s can also progress to an agressive blood cancer. Specific MPN conditions include Chronic Myelogenous Leukemia (CML), Essential Thrombocythemia (ET), Myelofibrosis (MF), and Polycythemia Vera (PV).