NephCure

NephCure’s mission is to empower people with rare, protein-spilling kidney disease to take charge of their health, while leading the revolution in research, new treatments, and care. Founded in 2000 by a group of committed patient parents, NephCure is the only kidney organization squarely focused on nephrotic syndrome, FSGS, IgAN, and other rare, protein-spilling kidney diseases. We push rare kidney disease (RKD) research and care forward, while connecting patients, families, healthcare providers, government agencies, industry partners, and other key stakeholders so everyone affected by RKD can thrive.

Since our founding, NephCure has invested more than $40 million in kidney disease research. We’ve helped create a new reality where patients have access to new treatments, including more than 60 interventional drug trials for rare kidney disease currently in progress.