The Lambert-Eaton LEMS Family Association

The Lambert-Eaton LEMS Family Association, a 501(c)(3) nonprofit, is dedicated to supporting patients, family, and caregivers for this ultra-rare neuromuscular disorder.

We have developed a LEMS CoRDS Patient Registry with Sanford Research to encourage quicker, more accurate diagnoses and better, new treatments for LEMS patients.

Outreach to physicians, clinicians, researchers and academics is ongoing to improve the visibility and awareness of this debilitating disorder.

As our name suggests, we are bringing ‘family’ to the LEMS community through online events, social media, and one on one communication, to bring our patients, family, and caregivers closer together in a common bond.
Facebook: https://www.facebook.com/people/The-Lambert-Eaton-LEMS-Family-Association/100085128384102/