Worster-Drought Syndrome Support Group

The Worster-Drought Syndrome Support Group (WDSSG) offers support to families affected by Worster-Drought syndrome; raises awareness of this disease among health professionals and other interested individuals; and supports and promotes research. Worster-Drought syndrome is a form of cerebral palsy sometimes also known as congenital supra bulbar paresis. It is associated with a range of problems that include difficulties with chewing and swallowing, speech, and coordination. Because of the varying nature of symptoms, diagnosis is often made quite late. The syndrome is named for a physician who studied this disease in the early 1950s. Formed in 1994, the support group is based in the United Kingdom but sends information, including a newsletter, around the world.