The National Organization for Rare Disorders (NORD)


Database Subscriptions

Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1,150 diseases.

Index of Rare Diseases

This is the list of diseases currently covered in the Rare Disease Database.

Rare Disease Database

Search this database for reports on more than 1,150 diseases.

View sample report

Index of Organizations

This is the list of organizations in NORD’s Organizational Database.

Organizational Database

Read about more than 2,000 patient organizations and other sources of help.

NORD's
Washington Office

NORD's Washington OfficeRead about events on Capitol Hill, funding for rare-disease research, and other topics of interest from NORD's office in Washington, DC.

 

The information in NORD's Rare Disease Database and Organizational Database is copyrighted and may not be published without the written consent of NORD.
    11Q Research and Resource Group
    22q and You Center
    22q13 Deletion Syndrome Foundation/Phelan-McDermid Syndrome
    49XXXXY
    4P- Support Group
    5p- Society
    8p Duplication Support Group
    A-T Children's Project (Ataxia Telangiectasia Children's Project)
    A-T Medical Research Foundation
    ABIL Inc. (Agoraphobics Building Independent Lives)
    ADA Technical Assistance Center
    AED Pregnancy Registry
    AGE - European Older People's Platform
    AGES Advocacy Group for the Environmentally Sensitive
    AIDSinfo
    ALD Family Support Trust
    ALS Association/Greater Philladelphia Chapter
    ALS Society of Canada
    ALS Therapy Development Foundation
    ANDO (Apoyo al Nino Down)
    APBD Research Foundation
    APS Foundation of America, Inc
    APS Type1.org
    ARCH National Respite Network and Resource Center
    ARPKD/CHF Alliance
    ASA Kids
    AVENUES
    Aarskog Syndrome Parents Support Group
    Abetalipoproteinemia Collaboration Foundation
    Abetalipoproteinemia Support Group
    Abiding Hearts
    Abledata
    About Madelung's
    AboutFace International
    AboutFace USA
    Achromatopsia Network
    Acid Maltase Deficiency Association, Inc.
    Acoustic Neuroma Association
    Acoustic Neuroma Association of Canada
    Adams Oliver Syndrome Support Group
    Addison and Cushing International Federation
    Addison's Disease Self-Help Group (UK)
    Adenoid Cystic Carcinoma Alliance
    Adenoid Cystic Carcinoma Organization International
    Adenoid Cystic Carcinoma Research Foundation
    Adoptive Families of America
    Adult Congenital Heart Association
    Adult Medical Genetics Program, University of Colorado
    Advancement of Research for Myopathies (ARM)
    Advocacy Center (Louisiana)
    Advocacy for Neuroacanthocytosis Patients
    Advocacy for Patients with Chronic Illness, Inc.
    Advocado Press, Inc.
    Agency for Health Care Policy and Research Publications Clearinghouse
    Agenesis of the Corpus Callosum (ACC) Network
    Aicardi Syndrome Awareness and Support Group
    Aicardi Syndrome Foundation
    Aicardi Syndrome Newsletter, Inc.
    Alagille Syndrome Alliance
    Alberta Neurofibromatosis Association
    Albinism Fellowship
    Alexander Graham Bell Association for the Deaf, Inc.
    Alkaptonuria Society, LTD
    Allergy and Asthma Network--Mothers of Asthmatics, Inc.
    Alliance Against Alveolar Soft Part Sarcoma
    Alliance for Technology Access
    Alpha-1 Advocacy Alliance
    Alpha-1 Association
    Alpha-1 Foundation
    Alpha-1 Research Registry
    Alstrom Syndrome International
    Alstrom Syndrome UK
    Alternating Hemiplegia of Childhood Foundation (AHC)
    Alveolar Capillary Dysplasia Association
    Alzheimer Society of Canada
    Alzheimer's Association
    Alzheimer's Disease Education and Referral Center
    Alzheimer's Disease International
    Alzheimer's Foundation of America
    Alzheimer's Society (UK)
    Ambiguous Genitalia Support Network
    Ambulatory Pediatric Association
    American Academy Of Child And Adolescent Psychiatry
    American Academy Of Facial Plastic And Reconstructive Surgery
    American Academy of Allergy, Asthma and Immunology
    American Academy of Audiology
    American Academy of Dermatology
    American Academy of Family Physicians
    American Academy of Neurology
    American Academy of Ophthalmology - The Eye M.D. Association
    American Academy of Orthopaedic Surgeons
    American Academy of Pediatric Dentistry
    American Academy of Pediatrics
    American Academy of Physical Medicine And Rehabilitation
    American Alliance of Cancer Pain Initatives (AACPI)
    American Art Therapy Association, Inc.
    American Association for Cancer Research
    American Association for Continuity of Care
    American Association for Geriatric Psychiatry
    American Association for Klinefelter Syndrome Information and Support

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Last modified Monday, April 28, 2008