Published May 14, 2025 by NORD
NORD’s advocacy helps Montana become 32nd state to create a dedicated council HELENA, MONT., May 14, 2025 — The National Organization for Rare Disorders (NORD®) celebrates Montana Gov. Greg Gianforte’s signing …
Read morePublished May 13, 2025 by NORD
New State Council Will Help Shape Health Policies for Arizonans Living with Rare Diseases PHOENIX, May 13, 2025 — The National Organization for Rare Disorders (NORD®) celebrates a significant milestone …
Continue reading “Arizona Becomes the 31st State With a Rare Disease Advisory Council”
Read morePublished May 1, 2025 by NORD
Congress is currently considering potentially sweeping funding cuts to Medicaid, a program that provides life-saving health care coverage and services to those who need it most. What is at stake …
Continue reading “Rare Faces of Medicaid: What’s at Stake for the Rare Community?”
Read morePublished February 14, 2025 by NORD
There are several proposed policy changes occurring across government entities, many of which have the potential to impact the rare disease community. At the National Organization for Rare Disorders (NORD®), …
Read morePublished February 10, 2025 by NORD
NORD offers comprehensive review on statewide practices related to screening sample retention, provides policy recommendations February 10, 2025, Washington, D.C. — The National Organization for Rare Disorders (NORD®) today published a …
Read morePublished December 21, 2024 by NORD
For the last several years, the National Organization for Rare Disorders (NORD) has had the privilege of working in close collaboration with Members of Congress from both sides of the …
Read morePublished November 6, 2024 by NORD
For 41 years, as a nonpartisan nonprofit organization, the National Organization for Rare Disorders (NORD) has collaborated with administrations and policymakers at every level to address the urgent needs of …
Read morePublished September 30, 2024 by NORD
Council will advise and advocate on the needs of California’s rare disease community SACRAMENTO, CA, SEPTEMBER 30, 2024 — California Governor Gavin Newsom signed into law AB 2613, legislation that …
Read morePublished September 24, 2024 by NORD
September 24, 2024 The National Organization for Rare Disorders (NORD) applauds the House of Representatives for passing the Give Kids a Chance Act, a major step toward providing more opportunities …
Read morePublished September 18, 2024 by NORD
WASHINGTON, D.C., September 18, 2024 — Today, members of the House Energy & Commerce Committee unanimously voted to advance out of Committee the Give Kids a Chance Act (H.R. 3433), …
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