Foundation for Ichthyosis & Related Skin Types (FIRST)
2025 Member
About Foundation for Ichthyosis & Related Skin Types (FIRST)
The Foundation for Ichthyosis & Related Skin Types (FIRST) is a voluntary organization dedicated to helping individuals and families affected by the inherited skin diseases collectively called the ichthyoses. The ichthyoses are a group of rare, inherited disorders characterized by abnormally dry, scaly, thickened skin due to abnormalities in the production of the protein keratin. FIRST provides support, information, education, and advocacy for individuals and families affected by ichthyosis. FIRST supports research into the causes, treatment, and ultimate cure for ichthyosis.
Related Rare Diseases:
- Keratitis Ichthyosis Deafness Syndrome
- Síndrome de Netherton
- Cardiofaciocutaneous Syndrome
- Epidermal Nevus Syndromes
- Peeling Skin Syndrome
- Ichthyosis
- Erythrokeratodermia with Ataxia
- Erythrokeratoderma
- Sjögren-Larsson Syndrome
- Multiple Sulfatase Deficiency
- Chanarin-Dorfman Syndrome
- Harlequin Ichthyosis
- Lamellar Ichthyosis
- Ichthyosis Vulgaris
- Keratosis Follicularis Spinulosa Decalvans
- Conradi Hünermann Syndrome
- Refsum Disease
- Queratosis folicular
- Tricotiodistrofia
- Ictiosis epidermolítica
- Pitiriasis Rubra Pilaris
- Eritema queratolítico invernal