Leukodystrophy Australia

The Australian Leukodystrophy Support Group, Inc (ALDS) provides professional counseling to leukodystrophy sufferers and their families; increases public awareness of leukodystrophy; acts as a source of information for healthcare providers; raises funds for research; and provides educational materials for patients and families. Leukodystrophy is the name given to a group of very rare, progressive, metabolic, genetic diseases that affect the brain, spinal cord and often the peripheral nerves. The name comes from the Greek “leuko” meaning “white” and “dystrophy” meaning “imperfect growth or development”. ALDS provides assistance and information to those affected by the leukodystrophies. ALDS also supports research into the disorder. ALDS offers a newsletter, and brochures on the leukodystrophies.