Dates: June 20–22, 2025
Location: Holiday Inn Orlando – Disney Springs, FL
Registration: Register here
Join us for the Gorlin Syndrome Alliance’s 2025 National Conference, a pivotal event for individuals and families affected by Gorlin syndrome. This year’s theme, “Our Story, Our Science,” emphasizes the integral role of patient experiences in shaping research and care.Facebook+5Gorlin Syndrome Alliance+5Gorlin Syndrome Alliance+5
Who Should Attend:
Individuals with Gorlin syndrome
Parents, caregivers, and siblings
Medical professionals and researchers
Industry partners and advocates
Highlights:
Engage with leading experts in dermatology, genetics, and psychology
Participate in workshops and discussions on the latest scientific developments
Contribute to prioritizing future research directions
Access group childcare services during sessionsGorlin Syndrome Alliance
Thanks to a generous sponsorship from Sun Pharma, registration is $50 per adult, with children under 13 attending for free. Additionally, travel scholarships and registration reimbursements are available for qualifying families. New this year, children aged 6–16 with Gorlin syndrome can attend Camp Wonder, a sun-safe summer camp, and then join the conference with their peers.
For more details and to register, visit the official conference page.
