In the coming months, Congress could vote on legislation that would strip Medicaid coverage and funding away from millions of rare disease patients. Please join us for a virtual training to learn more about the importance of the Medicaid program to rare disease patients and caregivers, tips on how to tell your story, and how to make your voice heard on this and other issues impacting the rare disease community! We will also discuss NORD’s programs and services, including how the Living Rare Study is helping us understand the rare disease community’s health care coverage and access experiences.
Date: Tuesday, May 13
Time: 12pm to 1:30pm ET
Location: Zoom
Click here to register!
One in 10 Americans lives with rare disease, many of whom fight a daily battle to access the care and support they need. Your gift to the National Organization for Rare Disorders (NORD®) funds life-changing programs and helps us advance policies and research to ensure that everyone gets the care they need AND deserve.
