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Rare Action on the Road – Burlington

November 2 @ 10:00 am - 2:00 pm EDT

Nord logo on blue background.

Vermont Rare Action Network (RAN) members are invited to join us in-person at Miller Center Community Room on Saturday, November 2 from 10 a.m. – 2 p.m. ET for an advocacy workshop! NORD staff will provide:

  • Education on Rare Disease Advisory Councils;
  • A workshop on how to advocate when meeting with legislators and staff;
  • An overview of NORD and how you can participate in raising awareness for the rare disease community!

Light refreshments in the morning and lunch will be provided; we hope you will join us! Please click here to register.

Details

Date:
November 2
Time:
10:00 am - 2:00 pm EDT
Event Category:
Event Tags:
National Organization for Rare Disorders