Event Date: May. 07 - 08, 2025 Event Time: Day One 8:30 a.m. - 6:30 p.m. ET, Day Two 8:00 a.m. ET - 2:30 p.m. ET Event Location: National Press …
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Autoimmune Pulmonary Alveolar Proteinosis (aPAP) is a rare lung disorder affecting approximately seven people per million. The disease affects individuals of all races, geographic regions, gender, and socioeconomic status. It …
Join @MissionMSA for the 2025 International MSA Congress, May 9–11 in Boston, MA or virtually! Connect with global experts, explore cutting-edge MSA research, and be part of the future …
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🌞 Join Us for a Family Picnic with the Connecticut Rare Action Network! 🌳 Calling all rare disease patients, caregivers, families, and allies — you're invited to a FREE fun-filled …
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Empower yourself with knowledge & community! Join the Wholistic Healing Summit (May 12-16, 2025) for expert info & support on Lichen Sclerosus (LS). Hosted by LSSN. Register now! #LichenSclerosus #LSSN …
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In the coming months, Congress could vote on legislation that would strip Medicaid coverage and funding away from millions of rare disease patients. Please join us for a virtual training …
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RCC Medical Education Working Group Meeting: June 18, 1:00 PM The purpose of the RCC Medical Education Working Group is to develop and support initiatives that educate a broad range …
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CDMRP Funding for Rare Cancer Research — 2025 Program Updates & Opportunities: May 21, 2:00 PM The NORD Rare Cancer Coalition will come together for our annual webinar on how …
Don't miss the CureDuchenne FUTURES National Conference is an annual event focused on bringing education, connection, and hope to individuals and families affected by Duchenne muscular dystrophy. May 22-25, San …
Join IWMF to celebrate their 30th Annual Ed Forum for #WM patients and caregivers May 30-June 1. The IWMF Educational Forum is a pivotal gathering designed to educate and empower …
🩺 2025 IWMF Educational Forum: Advancing Waldenström’s Macroglobulinemia Care Dates: May 30 – June 1, 2025Location: Sawgrass Marriott Golf Resort & Spa, Ponte Vedra Beach, FLRegistration: Register here Join the …
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Rare Cancer Coalition at ASCO! May 30 – June 3 The Rare Cancer Coalition will have a booth in the Patient Advocacy Pavilion at the American Society of Clinical Oncology …
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One in 10 Americans lives with rare disease, many of whom fight a daily battle to access the care and support they need. Your gift to the National Organization for Rare Disorders (NORD®) funds life-changing programs and helps us advance policies and research to ensure that everyone gets the care they need AND deserve.
