Cure LBSL will host the LBSL externally-led Patient-Focused Drug Development meeting on Aug. 1 at the National Building Museum in Washington from 10 a.m. to 3 p.m. This hybrid event …
Continue reading "Cure LBSL externally-led Patient-Focused Drug Development meeting on Aug. 1"
🌟 2025 LFSA Youth & Young Adult Workshop Dates: August 15–17, 2025Location: Boston, MAEligibility: Ages 13–25 with Li-Fraumeni Syndrome (LFS)Registration: Interest Form The LFSA Youth & Young Adult Workshop is …
Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …
Continue reading "🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings"
The 2025 CMTA Patient & Research Summit will be held on Friday, September 5th – Sunday, September 7th at the Embassy Suites at Indianapolis Airport in Plainfield, Indiana: https://summit.cmtausa.org The …
Continue reading "Charcot-Marie-Tooth Association Patient & Research Summit September"
🔬 DTRF International Research Workshop Date: Friday, September 12, 2025Location: Northwestern Medicine: Prentice Women’s Hospital, Chicago, ILDetails: Designed for researchers and medical professionals, this workshop presents the latest information on …
Date: Saturday, September 13, 2025Location: Northwestern Medicine: Prentice Women’s Hospital, Chicago, ILDetails: Join us for the cornerstone of the Together We Will Weekend. This meeting features educational presentations by clinicians …
In-person in Toronto, Canada, with virtual attendance options Join us for the 2025 International Scientific Symposium, taking place from September 17-21, 2025 in Toronto, Canada—a hybrid event designed specifically for healthcare professionals. This symposium …
AAMDSIF hosts Patient and Family Conferences around the United States each year. Conferences are free to attend and include presentations by the world's leading medical experts in rare blood cancers …
Continue reading "Aplastic Anemia and MDS International Foundation Patient and Family Conferences"
41ST ANNUAL MEETING OF THE HISTIOCYTE SOCIETY The 41st Annual Meeting of the Histiocyte Society will take place September 28-30, 2025 in Seattle, WA USA and online with Board and …
Continue reading "41ST ANNUAL MEETING OF THE HISTIOCYTE SOCIETY"
Rare Cancer Day: September 30 Rare Cancer Day is an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. Spearheaded by …
Annual Rare Cancer Coalition Reception: October 19 The National Organization for Rare Disorders (NORD) Rare Cancer Coalition is hosting a special networking reception at the NORD Rare Diseases & Orphan …
Continue reading "Annual Rare Cancer Coalition Reception: October 19"
Chondrosarcoma Foundation Think Tank Tuesday, November 11, 8:30AM: 2:30PM Boca Raton, Florida An interactive, one-day meeting to unite clinicians, researchers, industry, patients, and advocates to address how we can collectively …
