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🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings

Tagged in: Rare Cancer Coalition

Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …

🩺 2025 SNMMI Patient Education Day

Tagged in: Rare Cancer Coalition

🩺 2025 SNMMI Patient Education Day PheoPara Alliance Date: Sunday, June 22, 2025Location: New Orleans Convention Center, New Orleans, LAFormat: Hybrid (In-person & Virtual)Registration: Register here Join the Society of …

IPPF @healourskin on June 23rd for a Patient Education Webinar on Corticosteroids for Pemphigus and Pemphigoid and How to Manage Side Effects

Join the IPPF @healourskin on June 23rd for a Patient Education Webinar on Corticosteroids for Pemphigus and Pemphigoid and How to Manage Side Effects with Dr. Rachel Lipman, MD, Dermatologist and Internist …

International Pemphigus and Pemphigoid Foundation Virtual Support Group: June 24th

Connect Virtually with Other Pemphigus and Pemphigoid Patients and Caregivers in the Southern California area on June 24th. Living with pemphigus or pemphigoid is hard enough, but when you feel …

Living Rare, Living Stronger in Georgia

Georgia Aquarium 357 Luckie Street NW, Atlanta, GA, United States

NORD® Living Rare, Living Stronger® in Georgia is a one-day event to educate and support patients, caregivers, and their families with the focus in reducing or eliminating their burdens and …

2025 Cholangiocarcinoma Portland Symposium

2025 Cholangiocarcinoma Portland Symposium The 2025 Portland Cholangiocarcinoma Symposium will convene in Portland and draw together leading experts, researchers, healthcare professionals, patients, and advocates. This event promises to be a …

FOUNDATION FOR SARCOIDOSIS RESEARCH Global Virtual Summit June 28-29

United for Progress: A New Chapter in Sarcoidosis Join the FSR Global Virtual Summit | June 28–29 Learn the latest care Build global connections Get tools to thrive https://loom.ly/aLYtjh0 #FSR2025 …

2025 Foundation for Sarcoidosis Research (FSR) Virtual Global Sarcoidosis Summit – June 28–29!

Register for the 2025 Foundation for Sarcoidosis Research (FSR) Virtual Global Sarcoidosis Summit – June 28–29! This free two-day online event will feature 20+ expert-led sessions, 30+ educational booths, and …

rideATAXIA Hometown Boston – Sunday, June 29, 2025

rideATAXIA Hometown offers teammates the opportunity to ride individually or host local events for their community as part of the rideATAXIA Program Series. rideATAXIA Hometown Boston is proud to be …

2025 TSSUS National Turner Syndrome Conference

The 2025 TSSUS National Turner Syndrome Conference will be held in Portland, Oregon on July 18-19, 2025. This annual event is a program of the Turner Syndrome Society of the …

National Scleroderma Conference

As you may know, this year’s National Scleroderma Conference will be held in St. Louis, Missouri, from July 18-20, 2025. This year’s conference, with nearly 50 sessions, workshops, and networking …

Aplastic Anemia and MDS International Foundation Patient and Family Conferences

Tagged in: Rare Cancer Coalition

AAMDSIF hosts Patient and Family Conferences around the United States each year. Conferences are free to attend and include presentations by the world's leading medical experts in rare blood cancers …