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Cure LBSL externally-led Patient-Focused Drug Development meeting on Aug. 1

Cure LBSL will host the LBSL externally-led Patient-Focused Drug Development meeting on Aug. 1 at the National Building Museum in Washington from 10 a.m. to 3 p.m. This hybrid event …

🌟 2025 LFSA Youth & Young Adult Workshop

Tagged in: Rare Cancer Coalition

🌟 2025 LFSA Youth & Young Adult Workshop Dates: August 15–17, 2025Location: Boston, MAEligibility: Ages 13–25 with Li-Fraumeni Syndrome (LFS)Registration: Interest Form The LFSA Youth & Young Adult Workshop is …

Charcot-Marie-Tooth Association Patient & Research Summit September

The 2025 CMTA Patient & Research Summit will be held on Friday, September 5th – Sunday, September 7th at the Embassy Suites at Indianapolis Airport in Plainfield, Indiana: https://summit.cmtausa.org The …

🔬 DTRF International Research Workshop

🔬 DTRF International Research Workshop Date: Friday, September 12, 2025Location: Northwestern Medicine: Prentice Women’s Hospital, Chicago, ILDetails: Designed for researchers and medical professionals, this workshop presents the latest information on …

🧬 DTRF Annual Patient Meeting

Date: Saturday, September 13, 2025Location: Northwestern Medicine: Prentice Women’s Hospital, Chicago, ILDetails: Join us for the cornerstone of the Together We Will Weekend. This meeting features educational presentations by clinicians …

International Scientific Symposium 2025 | Toronto, Canada Pathways to Progress: A Decade of Insights and Innovations in EDS and HSD

In-person in Toronto, Canada, with virtual attendance options  Join us for the 2025 International Scientific Symposium, taking place from September 17-21, 2025 in Toronto, Canada—a hybrid event designed specifically for healthcare professionals. This symposium …

41ST ANNUAL MEETING OF THE HISTIOCYTE SOCIETY

41ST ANNUAL MEETING OF THE HISTIOCYTE SOCIETY The 41st Annual Meeting of the Histiocyte Society will take place September 28-30, 2025 in Seattle, WA USA and online with Board and …

Rare Cancer Day: September 30

Tagged in: Rare Cancer Coalition

Rare Cancer Day: September 30 Rare Cancer Day is an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. Spearheaded by …

Annual Rare Cancer Coalition Reception: October 19

Tagged in: Rare Cancer Coalition

Annual Rare Cancer Coalition Reception: October 19 The National Organization for Rare Disorders (NORD) Rare Cancer Coalition is hosting a special networking reception at the NORD Rare Diseases & Orphan …

Chondrosarcoma Foundation Think Tank

Tagged in: Rare Cancer Coalition

Chondrosarcoma Foundation Think Tank Tuesday, November 11, 8:30AM: 2:30PM Boca Raton, Florida  An interactive, one-day meeting to unite clinicians, researchers, industry, patients, and advocates to address how we can collectively …