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Event Series Aplastic Anemia and MDS International Foundation Patient and Family Conferences

Aplastic Anemia and MDS International Foundation Patient and Family Conferences

Tagged in: Rare Cancer Coalition

AAMDSIF hosts Patient and Family Conferences around the United States each year. Conferences are free to attend and include presentations by the world's leading medical experts in rare blood cancers and bone marrow failure diseases. It is also an incredible and important opportunity for patients and caregivers to connect with one another in person and share support, …

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Event Series 🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings

🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings

Tagged in: Rare Cancer Coalition

Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …

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🌟 2025 LFSA Youth & Young Adult Workshop

Tagged in: Rare Cancer Coalition

🌟 2025 LFSA Youth & Young Adult Workshop Dates: August 15–17, 2025Location: Boston, MAEligibility: Ages 13–25 with Li-Fraumeni Syndrome (LFS)Registration: Interest Form The LFSA Youth & Young Adult Workshop is a transformative event designed to empower young individuals living with Li-Fraumeni Syndrome. This workshop offers a unique opportunity to connect with peers, engage with experts, …

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Rare Cancer Day: September 30

Tagged in: Rare Cancer Coalition

Rare Cancer Day: September 30 Rare Cancer Day is an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. Spearheaded by the NORD Rare Cancer Coalition® every year since 2017, Rare Cancer Day is observed on September 30 to highlight the challenges patients face and to unify individuals living …

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Annual Rare Cancer Coalition Reception: October 19

Tagged in: Rare Cancer Coalition

Annual Rare Cancer Coalition Reception: October 19 The National Organization for Rare Disorders (NORD) Rare Cancer Coalition is hosting a special networking reception at the NORD Rare Diseases & Orphan Products Breakthrough Summit on Sunday, October 19.  The reception offers dedicated networking opportunities for patient organizations, academic research institutions, clinicians, regulators, and industry partners working …

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Chondrosarcoma Foundation Think Tank

Tagged in: Rare Cancer Coalition

Chondrosarcoma Foundation Think Tank Tuesday, November 11, 8:30AM: 2:30PM Boca Raton, Florida  An interactive, one-day meeting to unite clinicians, researchers, industry, patients, and advocates to address how we can collectively advance precision medicine and treatment for chondrosarcoma. The product of the think tank would be a meeting summary to support a strategic plan for the …

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