Achromatopsia Network

The Achromatopsia Network is a non-profit organization for individuals and families affected by congenital, inherited achromatopsia, a very rare vision disorder. Most members of the network are affected by the form of achromatopsia; known as rod monochromacy. Some are affected by a rare form known as blue cone monochromacy. Begun in 1994, the network provides information about this disorder and helps individuals and families affected by achromatopsia to connect with one another. Publications available include three books: “Understanding and Coping with Achromatopsia,””Living with Achromatopsia,” and “Handbook of Information for Members of the Achromatopsia Network.” There are over 500 members in this network, most of who are in the United States.