Children’s PKU Network

The Children’s PKU Network (CPN) is a non-profit organization dedicated to providing support and services to children with phenylketonuria (PKU), their families, and all those involved in the treatment of this disorder. PKU is a metabolic disorder characterized by severe mental retardation, seizures, and/or other abnormalities that may be prevented through early restriction of dietary phenylalanine. The network serves as a central operational base to assist in the gathering and dissemination of information on PKU and other related disorders, operates a national network hotline to provide PKU families with information about PKU clinics and support groups in their area, seeks to educate legislators concerning the needs of PKU families, and establishes programs for college scholarships, crisis intervention, and research.