CLOVES Syndrome Community

CLOVES Syndrome Community is a 501(c)(3), nonprofit organization whose mission is to support, educate, empower and improve the lives of those affected by CLOVES syndrome. Its vision is to have an improved quality of life for people with CLOVES syndrome. The goals of CSC include providing information and resources to educate others about CLOVES syndrome; fostering and promoting a supportive community; building and sustaining a broad base of funding sources to support their mission and goals; utilizing incoming funds to provide financial assistance to those impacted by CLOVES Syndrome and to help offset medical travel/expenses and equipment needs; participating in and promoting CLOVES syndrome research to assist in a complete understanding of the disease. CLOVES Syndrome (congenital, lipomatous, overgrowth, vascular malformations, skeletal malformations/scoliosis, and epidermal nevi) was first identified in 2007. CLOVE syndrome is characterized by progressive, complex and mixed truncal vascular malformations, dysregulated adipose tissue associated with congenital lipomatous overgrowth and epidermal nevi.