Costello Syndrome Family Network

The Costello Syndrome Family Network (CSFN) is a voluntary rare disorder organization the mission of which is to raise awareness of Costello syndrome. This extremely rare disorder affects multiple organ systems of the body and is characterized by growth delays after birth, excessive loose skin on the neck and elsewhere, and other distinctive physical features. In addition to raising awareness, CSFN is also dedicated to providing information, support and advocacy to families affected by this disorder. CSFN supports and advocates for research on Costello syndrome.