Cure MVID Association

At Cure MVID Association, our mission is clear: to conquer Microvillus Inclusions Disease (MVID) through collaborative efforts in research, patient support, and advocacy. Founded in 2023 by a family directly impacted by MVID, we are a non-profit organization.

Our Mission:
We’re dedicated to advancing scientific understanding and treatment options for MVID, a rare genetic disorder affecting the intestinal function of infants from birth. Our diverse team consists of families, supporters, scientists, and healthcare professionals, all committed to ending the suffering caused by MVID.

What Sets Us Apart:
Like all rare diseases, MVID presents unique challenges due to its rarity and complexity. Our association strives to bridge the gap between medical research, patient care, and community outreach. By fostering collaborations among physicians, researchers, patient groups, and industry partners, we aim to accelerate progress towards effective therapies and ultimately a cure for MVID.

Key Objectives:
– Promoting Research: We actively fund and support clinical and scientific research efforts aimed at better understanding MVID and developing novel treatment strategies.
– Raising Awareness: We believe that increased awareness leads to earlier diagnosis, improved patient care, and greater support for research. Through educational campaigns and advocacy efforts, we strive to shine a spotlight on MVID and its impact on patients and families.
– Supporting Patients and Families: Living with MVID can be overwhelming, both emotionally and financially. We provide resources, guidance, and a supportive community for individuals and families affected by MVID, helping them navigate the challenges they face.

Get Involved:
Whether you’re a researcher, healthcare professional, patient, family member, or simply someone passionate about making a difference, there are many ways to get involved with Cure MVID Association.