Disorders of Chromosome 16 Foundation

The Disorders of Chromosome 16 Foundation, formerly the Mosaic Trisomy 16 Registry and Resource Group, is a self-help organization dedicated to providing support and information to families of children with abnormalities of chromosome 16. The foundation, which was established in 1998, serves as a central clearinghouse of information on chromosome 16 disorders for parents and researchers, provides an informational packet consisting of peer-reviewed medical journal articles, and maintains a database on the chromosomal disorder. It is also building a network of individuals who can discuss common problems and concerns encountered by affected individuals, families, friends, and caregivers. In addition, the foundation promotes education of healthcare professionals who may work with affected individuals and families and helps arrange for affected families to assist in research on chromosome 16 abnormalities.