Dysautonomia Foundation, Inc., Toronto Chapter

The Dysautonomia Foundation Inc., Toronto Chapter, formerly the FD Familial Dysautonomia Foundation is an international, voluntary, non-profit organization dedicated to supporting clinical treatment, laboratory research, genetic testing and counseling, and parent and family support groups for children and adults with Familial Dysautonomia. Familial Dysautonomia, also know as Riley-Day Syndrome, is a rare genetic disorder of the autonomic nervous system (ANS) characterized by diminished sensitivity to pain, lack of overflow tearing in the eyes, a decrease in the number of knob-like projections that cover the tongue (fungiform papillae), unusual fluctuations of body temperature, and unstable blood pressure. Founded in 1982, the Foundation provides educational materials including reports, brochures, and a newsletter. The Foundation consists of approximately 2,300 members in Canada and the United States.