Illness Challenge Foundation

In the summer of 2014, the China-Dolls Center for Rare Disorders in alliance with Sina Weibo introduced the worldly renowned “Ice Bucket Challenge” to China. This campaign successfully promoted public awareness and social support for Amyotrophic Lateral Sclerosis (ALS) and other rare diseases. In furtherance of the sustained attention and vigorous support from the society, the China-Dolls Center for Rare Disorders and the Narada Foundation jointly founded the Illness Challenge Foundation (ICF) in 2016. The ICF is China’s first charitable foundation established by rare disease patients. The Illness Challenge Foundation is committed to providing resources and creating opportunities for rare disease patients on patient services, organization support, community development, innovation projects, social advocacy, and policy research. It also focuses on empowering rare disease patient organizations, building platforms for multiple stakeholders, creating signature projects with strong public engagement, promoting institutional support for rare diseases, and solving urgent matters faced by the rare disease community. By doing so, the ICF aims to create a supportive, righteous, and inclusive social environment with everyone’s rights respected for those who face the challenges of illness.