International Federation for Spina Bifida and Hydrocephalus

The International Federation for Spina Bifida and Hydrocephalus (IFSBH) is a worldwide organization created in 1979 by members of national organizations serving families affected by hydrocephalus and spina bifida. Its membership consists of national organizations for spina bifida and hydrocephalus in more than 40 countries. Its mission is to improve the quality of life for people affected by spina bifida and hydrocephalus, and to provide information and expertise aimed at decreasing the prevalence of these conditions.