To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Interstitial Cystitis Association


7918 Jones Branch Drive
Suite 300
McLean, VA 22102 USA





800 Number


Email Address

[email protected]


The Interstitial Cystitis Association of America (ICA) is a voluntary, non-profit organization working on behalf of all individuals with interstitial cystitis (IC), an inflammatory disease of the bladder in which chronic inflammation of the lining of the bladder and swelling of the bladder's interior walls result in pressure and pain above the pubic area and frequency and urgency of urination. Established in 1984 by individuals with interstitial cystitis, the association is dedicated to providing affected individuals with the most current information on the disease; offering a support network to affected individuals and their families; increasing awareness of the disease among the medical community and the general public; and establishing a national database to compile and study data concerning interstitial cystitis and promote research to find an effective treatment and cure for IC. The Interstitial Cystitis Association of America also promotes patient advocacy; testifies before Congress to support legislation beneficial to people with IC; funds several research projects for interstitial cystitis including its own Pilot Research Project Program; and conducts ICA national meetings and scientific workshops for interstitial cystitis researchers. It offers a variety of materials to affected individuals and the medical community including a regular newsletter, reports, journal article reprints, transcripts of workshops, brochures, videos, and audio tapes.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.