Interstitial Cystitis Association

The Interstitial Cystitis Association (ICA) is the only nonprofit organization in the United States dedicated exclusively to improving the lives of people affected by interstitial cystitis/bladder pain syndrome (IC/BPS). Founded in 1984 by individuals living with the condition, the ICA serves those experiencing chronic bladder and pelvic pain, pressure, or discomfort, often accompanied by urinary frequency and urgency.

As a trusted resource for patients, healthcare providers, and the public, the ICA curates and translates the latest scientific research into accessible, evidence-based information. The organization also fosters connection and support through patient communities where individuals can share experiences, learn from one another, and find encouragement.

The ICA offers a wide range of educational resources, including a monthly newsletter, research digest, award-winning magazine, webinar series, and its podcast, The Connected Journey: Life with IC. These programs help patients stay informed about emerging research, treatment options, and the shared experiences of others living with IC/BPS.

Advocacy is a central part of the ICA’s mission. Through a nationwide grassroots network, the organization empowers patients to become effective self-advocates while also engaging directly with legislators and government leaders to promote increased federal investment in IC/BPS research. The ICA advocates for dedicated funding through agencies including the Centers for Disease Control and Prevention (CDC), the Department of Defense (DoD), and the National Institutes of Health (NIH) to advance understanding of the disease, improve treatments, and ultimately find a cure.

Supported by the generosity of individuals, corporations, foundations, and partner organizations, the ICA continues to provide education, advocacy, support, and hope to millions of people living with IC/BPS, as well as the researchers and healthcare professionals working to improve their quality of life.