National Sjogren’s Syndrome

The National Sjogren’s Syndrome is an international, non-profit organization dedicated to providing information and support to individuals with Sjogren’s syndrome, family members, and healthcare professionals. Sjogren’s syndrome, a disorder of unknown cause, is characterized by deficient moisture production of the mucous-secreting glands, particularly the tear ducts of the eyes (lacrimal) and the salivary glands of the mouth. Associated symptoms and physical abnormalities may include abnormal dryness, itching, and burning of the eyes (keratoconjunctivitis sicca); abnormal dryness of the mouth, resulting in cavities, other dental disorders, and loss of odor and taste sensations; and, when the lungs are affected, increased susceptibility to repeated respiratory infections. Many affected individuals also experience rheumatoid arthritis. Sjogren’s syndrome, which primarily affects middle-aged women, is thought to be due to an abnormal autoimmune response. Established in 1989, the Swedish Sjogren’s Syndrome Association provides networking opportunities, engages in patient education, and offers a variety of materials including reports and a regular newsletter. It has a web site in both English and Swedish that explains the history of Sjogren’s syndrome, discusses current research in Sweden and around the world, and offers dynamic linkage to other helpful sources of information on the Internet.