Neuromuscular Disease Foundation (NDF)

The Neuromuscular Disease Foundation’s (NDF) mission is is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure. NDF is governed by a rotating Board of Directors, managed by its Executive Director, advised by their Scientific Advisory and other committees and supported by staff and volunteers. NDF works towards improving the quality of life for affected individuals and their families and caretakers by facilitating social and networking events, support groups, health, nutrition, and exercise workshops, as well as practical solutions to daily struggles for those living with disabilities related to GNE Myopathy.