Prader-Willi France

The Prader-Willi France, established in 1996, disseminates information about, and raises awareness of, Prader-Willi syndrome. Prader-Willi syndrome is a genetic disorder characterized by diminished muscle tone, feeding difficulties, and failure to grow and gain weight during infancy, short stature, genital abnormalities and mental retardation. In addition, beginning at approximately age six months to six years, affected individuals may develop excessive body weight, especially in the lower regions of the body. Prader-Willi France helps families break their isolation and provides them with information about living with this disorder. It also encourages research. Prader-Willi France serves families in France and other French-speaking parts of the world.