Skraban-Deardorff Syndrome Foundation

The Skraban-Deardorff Syndrome (SKDEAS) Foundation is dedicated to improving the lives of individuals and families affected by Skraban-Deardorff Syndrome, a rare genetic condition caused by changes in the WDR26 gene. Founded by a passionate group of parents and caregivers, SKDEAS.org serves as a central hub for education, community connection, and advocacy. Our mission is to raise awareness, foster meaningful connections within the SKDEAS community, and support groundbreaking research to better understand this condition. Through family meetings, partnerships with leading experts, and resources for families and medical professionals, the Foundation is committed to empowering those impacted by SKDEAS and building hope for the future.