NORD and 84 organizations urge Senate HELP leadership to incorporate the RARE Act into the FDA Safety and Landmarks Advancement Act
Published: Jun 3, 2022
Tagged in: RARE Act, Orphan Drug Act, Protecting FDA Standards for Safe and Effective Drugs
For decades, NORD has pursued federal and state policies that will change the lives of Americans impacted by rare diseases for the better. NORD’s work can be viewed below. This page is updated daily to provide timely information. Please contact us if you have questions or need additional information.
NORD and 84 organizations urge Senate HELP leadership to incorporate the RARE Act into the FDA Safety and Landmarks Advancement Act
Published: Jun 3, 2022
Tagged in: RARE Act, Orphan Drug Act, Protecting FDA Standards for Safe and Effective Drugs
Sign-on letter from over 100 rare disease patient organizations in support of the RARE Act of 2018
Published: Apr 18, 2018
Tagged in: RARE Act, Advancing Rare Disease Research and Regulatory Science