Project RDAC – Events

Rare Disease Advisory Council Upcoming Coalition Meetings

NORD is working with rare advocates throughout the country to build diverse coalitions to help implement Rare Disease Advisory Councils (RDAC) in their state. The first step in developing an RDAC is to bring together rare disease advocates to discuss unique challenges that their rare disease community faces in their state. The coalition meetings are a platform that allows advocates to provide valuable input to guide ongoing efforts to introduce and pass RDAC legislation across the country. Please use the registration links below to join an upcoming event in your state.

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Please check back regularly as more states are added. Questions? Email