Through the Project RDAC initiative, NORD provides opportunities for existing Rare Disease Advisory Councils (RDACs) to collaborate with each other on a regular basis and creates educational resources to guide RDACs at every step of their journey. In states without an RDAC, NORD is working with rare advocates throughout the country to build diverse coalitions to help states pass legislation to create high functioning RDACs.
Please email [email protected] to request additional information on events in your state.
EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a …
Continue reading "Rhode Island Rare Disease Advisory Council Coalition Meeting"
An event for members of existing Rare Disease Advisory Councils (RDAC). The 2nd Annual RDAC Member Meeting will be held in Washington, DC just before the NORD Rare Diseases & …
EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a …
Continue reading "Vermont Rare Disease Advisory Council Coalition Meeting"
EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a …
Continue reading "Vermont Rare Disease Advisory Council Coalition Meeting"
EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a …
Continue reading "Vermont Rare Disease Advisory Council Coalition Meeting"
EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a …
Continue reading "Vermont Rare Disease Advisory Council Coalition Meeting"
Please check back regularly as more states are added. Questions? Email [email protected].
