| Alabama | Alabama Rare Disease Advisory Council | Active | [email protected] | Contact NORD for more information |
| Arizona | Arizona Rare Disease Advisory Council | Active | [email protected] | https://www.azdhs.gov/prevention/chronic-disease/index.php#ardac-home |
| California | Jacqueline Marie Zbur Rare Disease Advisory Council | Active | Contact NORD for Information | Contact NORD for more information |
| Colorado | Colorado Rare Disease Advisory Council | Active | [email protected] | https://cordac.org/ |
| Connecticut | Connecticut Rare Disease Advisory Council | Active | [email protected] | https://portal.ct.gov/dph/programs/dph-working-groups/rdac?language=en_US |
| Florida | Rare Disease Advisory Council | Active | [email protected] | https://www.floridahealth.gov/about-us/boards-councils-and-committees/rare-disease-advisory-council/ |
| Delaware | Rare Disease Advisory Council | Active | [email protected] | https://ltgov.delaware.gov/rare-disease-advisory-council/ |
| Georgia | Georgia Rare Disease Advisory Council | Active | [email protected] | https://www.gararedisease.org/ |
| Illinois | Illinois Rare Diseases Commission | Active | 217-782-0843 | https://dph.illinois.gov/resource-center/advisory-boards/illinois-rare-diseases-commission.html |
| Indiana | Rare Disease Advisory Council | Active | 317-233-1325 | https://www.in.gov/health/cdpc/rare-disease-advisory-council/ |
| Kentucky | Rare Disease Advisory Council | Dormant | Contact NORD for Information | Contact NORD for more information |
| Louisiana | Louisiana Rare Disease Advisory Council | Active | [email protected] | https://www.legis.la.gov/legis/BoardMembers.aspx?boardId=1161 |
| Maine | Rare Disease Advisory Council | Implementing | (207) 287-3707 | Contact NORD for more information |
| Maryland | Rare Disease Advisory Council | Active | [email protected] | https://health.maryland.gov/phpa/cyshcn/Pages/Rare-Disease-Advisory-Council.aspx |
| Massachusetts | Rare Disease Advisory Council | Active | [email protected] | https://www.mass.gov/orgs/rare-disease-advisory-council |
| Michigan | Michigan Rare Disease Advisory Council | Active | [email protected] | https://www.michigan.gov/mdhhs/adult-child-serv/childrenfamilies/hereditary/michigan-rare-disease-advisory-council/meetings |
| Minnesota | Minnesota Rare Disease Advisory Council | Active | [email protected] | https://mnraredisease.org |
| Mississippi | Mississippi | Active | [email protected] | Contact NORD for more information |
| Missouri | Advisory Council on Rare Diseases and Personalized Medicine | Active | [email protected] | https://dss.mo.gov/mhd/pharmacy-committees |
| Montana | Rare Disease Advisory Council | Implementing | 406-444-3111 | https://dphhs.mt.gov/boardscouncils/RareDiseaseAdvisoryCouncil |
| Nevada | Rare Disease Advisory Council | Active | [email protected] | https://www.dpbh.nv.gov/boards/rdac/ |
| New Hampshire | Rare Disease Advisory Council | Active | 603-271-4517 | https://www.dhhs.nh.gov/about-dhhs/advisory-organizations/rare-disease-advisory-council |
| New Jersey | Rare Disease Advisory Council | Active | [email protected] | https://www.nj.gov/health/about/organization/bcc/njrdac/ |
| New York | New York State Rare Disease Advisory Council | Implementing | [email protected] | https://www.health.ny.gov/diseases/rare_disease/ |
| North Carolina | Rare Disease Advisory Council | Active | Contact NORD for Information | Contact NORD for more information |
| Ohio | Ohio Rare Disease Advisory Council | Implementing | [email protected] | https://odh.ohio.gov/know-our-programs/ohio-rare-disease-advisory-council |
| Pennsylvania | Pennsylvania Rare Disease Advisory Council | Reauthorization Process | [email protected] | https://pardac.org/ |
| Rhode Island | Rare Disease Advisory Council | Implementing | Contact NORD for Information | Contact NORD for Information |
| South Carolina | South Carolina Rare Disease Advisory Council | Active | https://rarediseasesc.org/ | https://rarediseasesc.org/ |
| Tennessee | Tennessee Rare Disease Advisory Council | Active | [email protected] | https://tnrdac.org/ |
| Utah | Utah Rare Disease Advisory Council | Active | https://utahrdac.org/contact/ | https://utahrdac.org/ |
| Vermont | Vermont Rare Disease Advisory Council | Implementing | Contact NORD for Information | Contact NORD for more information |
| Virginia | Virginia Rare Disease Council | Active | https://www.vdh.virginia.gov/rare-disease-council/contact-us/ | https://www.vdh.virginia.gov/rare-disease-council/ |
| West Virginia | West Virginia Advisory Council on Rare Diseases | Expired | https://wvrare.org/ | https://wvrare.org/ |
