Published September 7, 2017
Resource Library
Published January 22, 2021
Creating a Rare Disease Advisory Council in Your State
Published October 14, 2020
Just for You: Genomic Testing and Personalized Care for Rare Cancers
Published September 4, 2020
Screen Baby Screen: Perspectives on Newborn Screening
Published August 20, 2020
Impact of the COVID-19 Pandemic on the Rare Disease Community
Published June 27, 2020
Drug Supply in the Time of COVID-19
Published April 23, 2020
Called to Action: NORD’s Response to COVID-19
Published April 2, 2022
A Rare Response: Addressing the COVID-19 Pandemic
Published February 26, 2020
Starting a Not-For-Profit Organization: You Can Do It, We Can Help
Published February 11, 2020
Your Voice Matters: How to Engage with the FDA
Published August 31, 2018
Genetic Testing 101 for People with Rare Diseases
Published July 18, 2018
Gene Therapy: Your Questions Answered
Published January 10, 2020
Life After Gene Therapy
Published December 5, 2019
Understanding Gene Therapy Process and Aftercare
Published December 13, 2019