Published May 4, 2022
Resource Library
Published November 12, 2021
Navigating Insurance, Social Security Disability & Patient Assistance Programs
Published November 22, 2021
Coping with Grief and Anticipatory Grief
Published January 14, 2022
Getting Involved in Clinical Research: Finding and Preparing for Clinical Trials
Published January 18, 2022
Aging with a Rare Condition
Published January 14, 2022
Rare Breakthroughs: Now and On the Horizon
Published January 18, 2022
Palliative Care: Debunking the Myths
Published November 26, 2021
Rare in the Family: Navigating the Role of Patient, Parent and Caregiver
Published November 24, 2021
Building Resilience in a Time of Unknowns
Published March 21, 2021
Advocating For A Rare Disease Advisory Council In Your State
Published June 26, 2022
The 2022 Rare Impact Awards
Published November 15, 2019
10 Things You May Not Know About Rare Diseases
Published June 18, 2018
5 Myths About Orphan Drugs and the Orphan Drug Act
Published September 7, 2017
What does an insurance plan cover?
Published January 22, 2021