Policy Statement NORD and Rare Action Network Volunteer submit written testimony in support of Virginia Rare Disease Advisory Council (RDAC) legislation
News Cure MLD, The Calliope Joy Foundation and NORD Launch A Research and Engagement Study of Metachromatic Leukodystrophy (MLD)
News NORD Issues Statement Regarding the Release of Revised Draft of the Better Care Reconciliation Act
Policy Statement Rare Action Network Volunteer Ambassador submit written testimony in support of Arkansas Rare Disease Advisory Council (RDAC) legislation
Policy Statement NORD and Rare Action Network Volunteers submit written testimony in support of Florida Rare Disease Advisory Council (RDAC) legislation
News Five Years of Patient Registry Success: NORD’s IAMRARE™ Registry Program Celebrates New Partnerships and Models of Engagement
Policy Statement National Organization for Rare Disorders Urges Congress To Protect Funding for Rare Disease Research, Commends Exclusion of Work Requirements for Medicaid in Debt Ceiling Deal
News NORD and Trio Health to Provide Real-World Insights to Improve Access and Quality of Care for More Than 7,000 Rare Diseases
