At the head of the herd is… Taylor Kane, Founder and President, Remember the Girls
Taylor advocates for those living as… Carriers of all X-linked diseases
Taylor is located in… Mount Laurel, New Jersey
Taylor most frequently checks her… Twitter page
How Taylor got here… In 2001, when I was three-years-old, my dad… Read More
One of the unique aspects of the 2018 NORD Rare Diseases & Orphan Products Breakthrough Summit is its theme, “A New Era of Patient-Focused Innovation,” which we will be examining from a variety of perspectives. Kicking off the Summit will be the Patient/Caregiver Opening Address featuring a panel of… Read More
By David Cry, Guest Blogger
Courage. Strength in the face of pain or grief. A tenet I have experienced on many occasions as the lead of The Adrenoleukodystrophy (ALD) Foundation. I have heard it in the words of mothers whose sons have been… Read More
