BBBA Archives - NORD (National Organization for Rare Disorders)

NORD’s Response to the House Passage of the Build Back Better Act

Written by Rohan Narayanan on November 19, 2021

Washington, DC, November 19, 2021— Today, the House of Representatives passed H.R. 5376, the Build Back Better Act. In response, the National Organization for Rare Disorders (NORD), which represents the 25-30 million Americans living with a rare disease, released the following statement:

“Although NORD is encouraged by many provisions that will help… Read More

With the Build Back Better Act, Congress Threatens Progress for Americans with Rare Diseases

Written by Rohan Narayanan on November 18, 2021

As Congress continues to debate the policies to include in the final version of the Build Back Better Act, the House of Representatives has inexplicably chosen to take aim at one of the most vulnerable populations in our nation: the rare disease community. The Build Back Better Act, H.R…. Read More

Archives for: November 19th, 2021

NORD’s Response to the House Passage of the Build Back Better Act

Written by Rohan Narayanan on November 19, 2021

With the Build Back Better Act, Congress Threatens Progress for Americans with Rare Diseases

Written by Rohan Narayanan on November 18, 2021

Alone we are rare. Together we are strong.®